Our Gateshead

ADDER (Action for Dystonia Diagnosis Education & Research)

ADDER
About us: 

Aims/Objectives:  Raise awareness of dystonia amongst the general public and medical profession.  Promote the treatment and offer support and welfare to people with dystonia, their carers and family.  Encourage research amongst the medical profession.

Dystonia is a rare neurological movement disorder which causes involuntary and prolonged muscle contractions. Dystonia can appear in any muscle group in the body and can be extremely painful and debilitating.

It is a difficult condition to diagnose and unfortunately is all too often misdiagnosed leading to incorrect treatment.

At ADDER we work hard to raise awareness of this condition which has no cure and while it is not life threatening it is life changing.

We are currently trying to raise £100,000 for a Genetic Research project to be carried out at Newcastle University the main aim being to identify the faulty genes which cause dystonia and from that enable correct diagnosis by a simple blood test.

If you think you may have dystonia or already know that you have, or maybe someone else you know has this condition, have a look at our website for more information and you are always welcome to become a member of ADDER.

 

Contact Person: 
Gill Ainsley
Telephone: 
0191 492 2793
Address: 
Kibblesworth Millennium Ctr
Grange Tce
Kibblesworth
Gateshead
NE11 0XN
Attachments: 
Listed under

Other content by this organisation

No regular events are currently being listed by this organisation.

No upcoming events are currently being listed by this organisation.

No News items are currently being listed by this organisation.

No services are currently being listed by this organisation.

No rooms to hire are currently being listed by this organisation.

No volunteering opportunities are currently being listed by this organisation.

Join OurGateshead

 - Recieve email updates when Items of interest are added

- Create a favourites page

- Create printable summary pages

More...